Friday, 7 February 2014

Moving House, Moving On

It's been another busy, busy week with lots going on.

Waiting to unload!
Monday started with Sarah and Oli getting the keys to their new house. They started the process of buying the house just before I had my transplant, so I was hopeful I would see them get the keys and see them settled in their new house, although I knew I wouldn't be able to help them in the condition I was in with my pulmonary hypertension.

And we are in!
I'd forgotten how stressful buying a house is, how you have to keep chasing solicitors constantly and keeping up to date with what stage things are at and then chasing again and again. It always feels like everyone is sitting about doing nothing until you keep pushing and then another little thing gets done, small steps at a time. I'm sure it could all be a lot quicker and efficient, but nothing seems to change over the years. So it hasn't surprised me that it's taken four months to complete the sale, with the little blip of my transplant and Chistmas thrown into the mix as well!

Most important job - getting the internet sorted!
Because of my transplant, what has been really amazing is that I was actually able to help out with the house move. Of course I couldn't do any of the lifting boxes and heavy furniture, but I was able to help unpack boxes and put things away. So I was left in charge of sorting out the new kitchen and making the tea. I had plenty of energy for both, not like old times when just getting to the new house would have been an effort, let alone trying to do much to help.

That was a lot of boxes - tea break needed!
It felt another big milestone in my journey since being unwell - to see my daughter buy her first home with Oli and help them move in. It is something that as a mother I have always looked forward to doing. We are planning a shopping trip or two next to buy some nice bits and pieces for the house and I'm looking forward to helping them transform the garden in spring. There seems so much to look forward to now, especially as I'm able to do much more than I could.

Kitchen looking good!
Tuesday was time for the transplant clinic again, both for blood tests to check my Tacro levels and to collect more drugs as my Prograf drug dose has been increased. It was a quick visit for once and we had time to visit Sarah and Oli on the way back - they are nearer to Papworth than us now - exactly 38 minutes to be precise! That may come in handy!

At last - all unpacked!
Next up was a visit to the dentist, my first one since my transplant. I've been going to my dentist for 22 years now, so he was interested to know all about my transplant. He needs to know all about the medication I am on and keep a very watchful eye on my teeth. My medication can cause problems with my teeth and gums and it is one of the stipulations of going on the transplant list that you visit the dentist for check ups regularly and continue to do so. I was pleased that all was fine, especially in the light of my operation and being on a ventilator and having various tubes and cameras in my mouth,  throat and windpipe, which can also cause damage to your teeth - in the process. I also had to rely on other people cleaning my teeth for me during those first weeks after the operation and no matter how hard someone tries it isn't the same as doing it yourself, so I was a bit bothered my teeth had taken a hammering. 

Smile please!
This morning it was time for a photo shoot and a photographer working for the British Heart Foundation came to visit to get some photographs of me for their article on Pulmonary Hypertension. I was interviewed for this article earlier this month and it is going to be featured in the May edition of 'Heart Matters'. Now I was a bit nervous about this one as I got a whole itinerary from the Art Director about what to wear, what they want to achieve and how it may take a few hours - all the other photographers for the newspapers and radio that have visited usually just take a few quick shots and it's all done and dusted in a few minutes. So I found myself worrying about what I should wear and chopping and changing my mind every five minutes about it. A typical woman, I suppose! It turned out to be lots of fun though and hopefully there might be a few good pictures! 

Oops think we need another!
You can sign up to the 'Heart Matters' magazine on line, it is a useful and interesting magazine both for people with heart problems who want to learn more and for those who just want to be healthy and look after their heart health. Click on the link for more information and to sign up to get the magazine - it is free. Look out for the May edition if you do sign up!

Another smile...that's better!


  1. I just found your blog and I have to say your story is inspiring. I am 26 and need a heart/liver transplant. It is comforting to hear how other people cope and show such courage. Thanks for sharing your story.

  2. I hope you keep well Mallory and get your transplant soon, Kath x

  3. It's my hope that this note has found you grinning so large a Cheshire cat would be green with envy.

    I am reaching out to you hoping that you will lend your support and the power of your network to the following campaign, which benefits the Pulmonary Hypertension Association's mission to find a cure.

    My Lady, diagnosed with PH in March of 2013, was recently the subject of an article titled, The Challenges of Chloe Temtchine for the Huffington Post. Here's a link:

    Additionally, we just began a video campaign in collaboration with the PHA. This is the first video:

    On March 10th she will be the subject of Caring Voice Coalition's magazine monthly issue.

    On March 29th, she will be performing for more then 3000 people directly afflicted directly or indirectly by PH.

    Thereafter, she will be the subject of Pathlight, the quarterly issue of the Pulmonary Hypertension Association as well as a performance at the International Conference in June.

    It's my intention to align with all those speaking about PH online and leverage their network to help us shine a light on this campaign, which will raise the much needed awareness for PH.

    Kindest regards and...