I'm a lifestyle blogger - blogging on writing, books, travel, photography, gardening, nature and simple musings on life. Not forgetting I just happen to be a Pulmonary Hypertension survivor, Heart and Double Lung Transplant recipient and an avid Organ Donation campaigner...
I just want to wish everyone a very happy and peaceful Christmas and hope that the New Year brings you health, happiness and is the year you can make some of your dreams come true.
I'm especially hoping my PH and transplant friends can remain in stable health and those waiting for transplants, that their calls will come very soon then they can start rebuilding their lives once more.
I know I've been truly blessed to have been given my life back this year and see my health get better and better and also to have been given some wonderful opportunities to experience new things, new places and new directions in life.
As a family we are forever grateful to the teams at Papworth Hospital, who have worked so hard over the years and still do to keep me well and we are forever grateful to my donor and their family for giving me this brilliant, amazing and most memorable year.
We have finished the year on a really big high, we made a dream of ours come true and flew out to see New York at Christmas time. It was a truly magical experience and all the more special because I didn't ever believe I would even fly in an aeroplane again, let alone do a long haul flight to somewhere we had always dreamed we may go together one day.
It felt like a big step to make, but we had a fabulous time and walked for miles so we could see everything there was to see; we Christmas shopped until we nearly dropped and pinched ourselves over and over again. In fact, we are still pinching ourselves...
As always my donor wasn't ever far away from our thoughts, as it was all because of her that we were able to enjoy the many special moments that we shared together, moments we believed we would never have and seemed beyond our wildest dreams...
Now it is Christmas Eve and time to enjoy the festivities.
Merry Christmas everyone!
While I was in New York, NHSBT launched their Christmas campaign to raise more awareness of transplant and organ donation: I was fortunate enough to take part in this by doing a couple of press and radio interviews beforehand. My three Christmas wishes were:
1. That there isn't such a shortage of organ donors
2. That everyone waiting for transplants could be as lucky as I have been and get a successful transplant
3. To go Christmas shopping in New York
One of those wishes has come true, so I'm hoping that 2015 will bring the rest. Please think of signing up to the organ donation register and click on the link below this blog.
My friend Terry, who has had a heart transplant, has made a track called 'Show Love Today' with his band, The Street and Mark Moraghan. He has done it to help raise funds for the British Heart Foundation and to raise awareness of organ donation. He has also managed to get the support of all the Coronation Street cast in the process too!
Coronation St is currently running a story featuring Les Dennis, who plays Michael - Gail's boyfriend. Michael has been struck down with a genetic heart condition. The British Heart Foundation are currently funding much work on genetic causes of heart disease. They gave funding to help the genetic research currently being undertaken by Professor Morrell, at the Cambridge Centre of Research Excellence, on the genetics of Pulmonary Hypertension, so the BHF's research is something close to my heart.
To watch the video and listen to the track click on the link below: it features Terry, myself and some of my transplant friends - some of those we have lost while they waited on the list; some of us who have been lucky enough to receive a transplant and have our lives changed dramatically and those who are still waiting.
We chose this picture for my picture in the video, as it just about sums up what transplant can do to transform someone's life - from using a wheelchair to kayaking once more, something I thought I would never do again! This moment was one of the highlights of my year post transplant!
There are still 3 people a day dying while they wait for a transplant, so come on, 'Show Love Today' and sign up to the organ donor register. Click below to order the track and support BHF:
Christmas is around the corner and we are all ready more or less: presents wrapped, cards written and posted and house decorated both inside and out. It has got me thinking about last Christmas, just a few months following my transplant. I'm constantly being asked what was it like that first Christmas post transplant? This was how it was, that first Christmas morning...
I wake and there
are tears in my eyes. It is still dark and I lie quietly while I pinch myself
and absorb what has happened. It is Christmas morning.Another milestone has been reached. I’m still
I had hoped for
this day. Hope. It can take you a long way on a journey into the unknown.
I’d arrived at my
destination. Christmas. A normal loving family Christmas. The realisation
dawned. It had been a hard route. Rob, my husband stirs and we wish each other
Merry Christmas, we wander downstairs and put on the Christmas lights: festive white
lights twinkling inside and out. Everything is ready. Tears slide gently down
my face. I knew it would be emotional. I hold them back, but they cannot be
contained – they trickle softly like snowflakes falling from a laden sky – they
keep coming.It is bittersweet.
ready. Stockings bursting: gifts waiting patiently underneath the tree. It’s a
real Christmas tree – it’s family tradition.Collections of Christmas trinkets and decorations gathered over many
years and from many places have been lovingly placed around the house.
downstairs, it’s 8am, late in comparison to years past, but she is grown now –
not our excited young child anymore, but still excited, as we anticipate
Christmas. We breakfast to Christmas songs while we wait patiently and
restrained for Sarah to arrive. A young
woman, now flown the nest, but always excited for our Christmas together.
A family together
– just like any other family. She arrives and the celebrations begin. Rob and I
watch as Sarah and Rose follow tradition opening their stockings first. We
laugh, joke and enjoy the moment. We exchange gifts and slowly unwrap each
present, surprised and pleased with our discoveries.
I’m teary still;
it’s overwhelming at times.
We are by the tree
and it catches my eye. The beautiful bright red heart shape, sprinkled with
gold that hangs there in prime position. It flashes in the Christmas light like
the Christmas Star. It reminds me why I’m enjoying this beautiful moment
surrounded by my family; why I enjoy every moment now; every minute; every
hour; every day.
decoration, a memory of my beautiful donor – the person who gave me a heart
that now beats loud and strong inside me - and my new lungs, lungs that allow
me to breath easily without fear.
decoration, it hangs as a memory of the person who has given me another
Christmas morning with my loved ones: a gift that has given me back to my
family, a legacy rippling amongst us.
We carry on
unwrapping our presents, but we know we have already had the greatest gift of
all – the gift of a new life: a renewed family life. What greater gift could we
have ever wished for?
We continue our
day, just like any other ordinary family; but for us this is extraordinary …
It is NHSBT's Christmas Campaign this week and all in our transplant community are thinking of those still waiting on the transplant list and hoping they can have their lives and those of their families transformed. So if you wish to do something special for Christmas: have the discussion about organ donation with your families and sign up to the organ donor register. The link to sign up is listed below.