|St Annes on Sea - a childhood haunt of mine|
I had decided for this holiday, no posh hotels, no posh dinners, no changing medication times, no trying to go out earlier in the day that I can manage, no pressure to keep challenging myself. I would just do whatever I felt up to and no more.
The weather was managing to keep fine and we went out and about to places old and new, days went by and I realised I had been feeling pretty good as we kept getting out and about every day with no incidents, I was even suggesting calling at the pub for a glass of wine. I am allowed one glass of wine per day if I like, but to be honest for months and months I hadn't really felt like it. There may be an odd time when I fancy a glass and then by the time I've poured it I can't face it, so this was highly unusual for me.
|The estuary near our cottage at Milnthorpe|
We had a fabulous time, except for the restrictions I have such as walking too far and tiredness, life felt as close to old times as it had ever been.
The Olympics were still going on for some of the time while we were away and this provided second to none entertainment each night on TV and on the radio as we travelled about. We enjoyed the closing ceremony and afterwards felt like we were having withdrawal symptoms!
|Holehird Gardens, Nr Windermere|
Sarah, also, was on her second interview for a new job, so we were keeping fingers crossed for her too. She has also just completed her first year of her Sociology degree with the Open University.
I am so proud of how my girls have coped with my illness and poor prognosis and how they have just buckled down and got on with things through it all, they have been so strong through a lot of trauma, especially when they have both had to contend with exams.
I went to see the doctor about my skin problem as it just would not clear up. She thinks it may be a fugal infection and has prescribed me some anti fungal and steroid cream, so I will see how that goes.
It is a real nuisance as I'm still feeling pretty good within my limitations, there just always seems to be something. Of course my INR had also gone a bit haywire with my little wine tipples, but I think my nurse just thought 'good for you, enjoy while you can', she has just adjusted my warfarin to enable me to have a glass or two a week now if I'm still feeling like it!
You cannot get away with anything when you have PH and are on the Transplant List - a little drink, putting on an extra pound or two, sneaking off somewhere further than an hour away - someone always has to know or finds out!
Rose has gone off to Reading and we are going back to The Lakes for the August Bank Holiday and some of the following week. When we get back its going to be all change once more in our household, but change for the good I hope.
|I miss swimming, but I can paddle!|