Saturday, 31 October 2015
Looking to the Year Ahead...
For me, autumn has always been a little like New Year, a time for a fresh start. I think it's after being in the teaching profession and working in school and the new school year starting in September. Autumn was always a time to reflect and plan for the year ahead. Now autumn will always be a very significant time in my life as it's the season I received my transplant and my second chance at life. Autumn, therefore, feels very poignant as a time to think ahead and into the next year.
I remember thinking how am I ever going to have a better year than the first year after my transplant. It was such an amazing year being able to do so many things that I'd believed I'd never do again and have so many wonderful new opportunities having been given my life back. Now I've just passed the two year anniversary of my transplant and I'm thinking the same yet again and wondering what my third year post transplant is going to bring. So I'm hoping and planning for it to be another good one.
Health is always going to be one of my highest priorities in having another good year. I can only try my best to remain as healthy as possible with exercise and diet and following the advice given by my transplant team, who continue to look after me well. Autumn is flu jab time, so I had mine last week - it's another preventative measure in the hope of keeping my lovely new lungs working well. At the moment they work beautifully and I'm trying hard to keep it that way. Sometimes I feel like it's a game of dodging in and out amongst all the coughs, colds and sneezes. It always surprises me how many people think it's ok to cough and splutter all over others without a second thought - or maybe it's just me being more aware or even paranoid!
Another priority will always be campaigning to raise awareness of Pulmonary Hypertension and Organ Donation and I've been planning for the year ahead already on this front. For the last year or so, as many of you already know, I've been writing a memoir all about my journey with Pulmonary Hypertension and through transplant. I'm hoping it will give readers a valuable insight into what it's like to be diagnosed with and live with a life threatening, rare and terminal condition, the difficulties coping with a long wait for a transplant, as well as undergoing a major transplant operation and the life changing differences a transplant can make. I hope it will be of interest to anyone affected by either Pulmonary Hypertension or transplant or both, as well as anyone suffering with any type of life threatening or chronic illness.
Hopefully it may appeal to a more general audience too, as it is about surviving against all the odds and a miracle happening! I'm planning my book launch for early in the new year and hopefully this will help renew and refresh my campaign to raise awareness and through my book I may be able to reach new audiences. I hope to raise some funds for PH genetic research and transplant support at Papworth hospital if anyone buys it! For me, it's a big project and as well as raising awareness for PH and organ donation, I'm personally very excited about it and looking forward to having my own book published and giving my campaign to raise awareness a new lease of life.
Through my hospital, I've also become involved with several patient focus and advisory groups over the last year, which has been interesting and is leading to more and more interesting projects such as working with researchers and university students and of course work that is related to organ donation and transplant. I'm also part of the Transplant Patients Representative Group at Papworth and we are currently working with the Transplant Team on some new ideas.
One of the problems many patients face after overcoming many years of illness is finding a role and purpose in life once more and that takes time and I believe it's part of the recovery process. I'm hoping all these new avenues will develop and continue to keep me busy - they certainly have until now. I'm sure there will be unexpected surprises too - I hope so and I'm excited to see what life brings next!
Thanks for taking your time to read and to all my regular readers,
PS. I've been working on this blog and my other social media sites in readiness for my book launch early next year.
I have a new author Facebook page so you can track my book progress and see where I'm up to in my writing process. It'd be fantastic if you would click on the page below and 'like' and 'share'.
Most importantly, I've changed my blog URL link for this blog - 'Life is for the Living' - to:
So if you have any links to my blog they will need to be changed to the new link if you'd like to continue following.