This week has been a busy week of check ups and appointments for this, that and the other, as well as being the beautiful, warm, sunny week that we all have been waiting for.
All went well for this visit and as most people do at the hairdressers, I felt I'd had a pampered afternoon out and felt better for a new trim. My body behaved itself for me that time.
|Greenhouse at Wimpole|
I am lucky I have been going to both my dentist and hairdresser for many years and they know all about my illness and are therefore both respectful and helpful throughout every visit. It is really hard for people to understand, as to everyone else passing through the dental surgery or hairdressers I just look like any other person and that's exactly how I want it to be; I want to be part of the real world and I long to be able to feel I could just go out normally without having to think about the consequences of everything I do. It can feel really hard at times to just undertake such casual, normal things that happen easily and naturally every day for most people. I know if I ever have my transplant and it gives me my health back, it will be just these simple things I will be able to do again without stress that I will value the most every single time I wake up in the morning.
Thursday I had an appointment at the Lister Hospital with the ENT specialist about my ongoing ear problem and to get the results of my CT scan. As I had expected and hoped all was well - well apart from being a bit deaf, which I am told can be normal for my age! I've now been discharged, so that is one less thing to worry about.
My week was rounded off with a visit to the Transplant Continuing Care Clinic for my review. Again all went well here too, just the usual blood tests and checks by the consultant. We met a new consultant today, who was really approachable and lovely and we spent some time talking to Anne, the Transplant Co- ordinator. We also had the chance to meet Bernice at last, another heart and lung transplant patient, who we have been in contact with and was featured in the same news report as us when we took part in ITV's 'From the Heart' campaign. It was lovely to meet her.
|A wishing well and sunny skies - guess what I wished for!|
So all in all a very successful week. We have now nearly got to Saturday and I feel like I've had a full MOT. With my shiny trimmed hair and my sparkly teeth, I know my heart and lungs are still on their best behaviour and there is nothing sinister about my ear, so all is good with my world! The sun has shined and it's been a lot warmer too, which I think we've all been waiting for and enjoyed. We have, as usual, tried to make the most of the week and have enjoyed the garden and the plants that are now emerging and daring to come out after all the cold; we have enjoyed meals in the sunshine and managed to get out and about in the warmer weather in between all the comings and goings.
After 586 days of being on the Transplant List, I am still on course for having a heart and double lung transplant. It is becoming a bit of a fantasy in my mind after all this time and still feels as far from my grasp as it did when I was first placed on the Transplant List. I am, for now, just grateful that I am feeling quite well and able to keep on enjoying life as well as being well enough to stay on the Transplant List.
|Daffodils at their finest at Wimpole|